Total amount requested $13,260.72- over the monthly limit by $3,260.72
April Case Summaries Status Updates- Please see the separate attachment
Baby Sharon Committee 5/27/25
Present on the Zoom call were Sarah Owen, Richard Emmel, Mark Pearson, and
Patrick Casey, with Mark Grummer from the ACH Social Work Department
Case #1: This case involves a 21-month-old with chronic lung disease, chronic
respiratory failure, and a G-Tube, who was discharged earlier this year (after over a year
and a half's admission) and has had multiple readmissions since. This patient sees multiple
disciplines and is trach-dependent. The family has been doing well with covering
expenses throughout all the patient's needs and admissions. The family has also been
adjusting to having a trach-dependent child who needs around-the-clock care and
observation and is now living in the home. The caregivers (who are currently both working only
have one vehicle, which recently broke down and needs transmission repairs. The
repair costs have put a financial strain on the caregivers, so they have been putting it on
hold. Therefore, we are submitting for your consideration a request for $1,900 for
auto repairs. Total Request $1,900
The committee approved $1900 for car repairs.
Case #2: This case involves a 3-month-old who was born prematurely at 30 weeks'
gestation. The patient was transferred to ACH due to sepsis, meningitis, and seizures
and is still in the NICU. Neurology is following the patient, and it was recently
determined that there is a severe cerebral injury, which results in poor long-term neuro
prognosis. The primary caregiver is also the primary financial source for the patient, as
well as other siblings. The caregiver has been on unpaid leave due to the patient's birth
and medical needs. The caregiver has been doing their best to physically, emotionally,
mentally, and financially support their children. Due to all of the medical needs, the
caregiver's monthly bills are behind, mainly the electricity and water bills. We are hoping
that support can be provided to help pay these bills for May and June to
help ease the caregiver's burdens. Therefore, we are submitting for your
consideration a request for $156 for the water bills and $654.72 for the electricity
bills. Total ask: $810.72.
The committee approved $810.72 for water and electrical bills.
Case #3: This case involves a six-week-old born at 33 weeks' gestation who was
diagnosed with trisomy 21, heart disease, and chronic kidney disease. The patient's kidney
function has continued to decline, which is leading to the beginning of dialysis. In the future,
Baby Sharon May 2025 Case Summaries
Number of cases: 5
Total amount requested $13,260.72- over the monthly limit by $3,260.72
April Case Summaries Status Updates- Please see the separate attachment
The patient will need to have heart surgery and likely a kidney transplant, which means
they will be staying in the NICU for several more months. The patient's mother is the sole
caregiver and financial support, and has been on unpaid leave from their employment
since the patient's birth. Mom was in a car accident shortly after the patient's birth, which
caused complications related to giving birth. They are currently under medical care and
, therefore, cannot return to work at this time. Mom also cares for other siblings at home
(two siblings have developmental delays), so she has to be present at home as much
as possible. Therefore, the mom cannot stay overnight with the patient.
Due to the patient's long-term needs at the hospital and the mom's inability to return to
work, the family is in dire need of financial assistance to keep their
housing. Therefore, we are submitting for your consideration a request for three
months' rent ($1350 x3=$4050). Total ask: $4050.
The committee approved $ 2,700 for two months' rent.
Case #4: This case involves a five-month-old patient born prematurely at 27 weeks'
gestation, who was admitted to the NICU for over four months. Due to their
complications from premature birth, they developed brain bleeds, which resulted
in post-hemorrhagic hydrocephalus, which requires a shunt. After discharge, they
continue to have several follow-up appointments with hematology, nephrology,
neurosurgery, cardiology, and others. The patient has been referred to early
intervention services for physical therapy, speech therapy, and other services.
The patient had a recent overnight admission due to their hydrocephalus and
shunt reprogramming needs. The patient is still on a waiting list for a
developmental daycare.
The patient resides in a single caregiver home with another sibling. The
caregiver lost their job during the patient's NICU admission due to the severity of
medical issues and training needs. The caregiver has been actively applying for jobs
and has been on several interviews; however, she has not yet been hired. They plan
to continue the job search while also waiting for a daycare to accept the patient
so they will have childcare/therapy services without needing to take time off
work. Last month, the family's landlord threatened to evict them unless the rent was
paid. They were able to gather enough money for one month's rent, but they need
assistance in the future until they can find employment. Therefore, we are
submitting for your consideration a request for four months' rent
($1050x4=$4200). Total Request: $4200.
The committee approved $ 3,150 for three months' rent.
Baby Sharon May 2025 Case Summaries
Number of cases: 5
Total amount requested $13,260.72- over the monthly limit by $3,260.72
April Case Summaries Status Updates- Please see the separate attachment
Case # 5 This case involves a four-week-old newborn patient currently receiving care
in our NICU after admission at 3 days of age. The patient is here due to
abdominal distention and is unable to eat; currently suspected of having
Hirschsprung's disease. Due to the families' medical issues and lack of
transportation, they have been unable to be at the bedside until this week to
start patient feeding training. We anticipate the patient to be here for several
additional weeks. The family has faced significant hardship, including recent
homelessness, and they are now working tirelessly to rebuild stability and create
a safe, healthy environment for their patient. Currently, there are a couple of needs
from a medical/health perspective that we are seeking assistance with to help
with the discharge of the patient into the home. The family's home environment
needs a deep clean to make it safe and suitable for the patient's return. Due to
the caregiver's own medical needs, they have been unable to maintain the home, so
they need a professional cleaning service. Cleaning would help not only a physical
reset but also a much-needed emotional and mental boost to start anew with a
healthier, more organized space. Additionally, the family currently lacks access to
laundry facilities, so we are seeking assistance in purchasing a washer and dryer
for the home. Providing these machines would alleviate the stress and logistical
burden of securing transportation to the laundromat and ensure the family can
maintain clean clothing and linen, crucial for the health of a newborn. Therefore,
we are submitting for your consideration a request for $500 towards professional
housecleaning and $1800 towards the purchase of a washer/dryer. Total Request:
$2300
The committee approved $500 for the house cleaning and $1000 for the purchase
of a washer and dryer for a total of $ 1,500.
The total support provided this month was $10060.92
